My mom suggested I start a pain
dairy to keep track of my symptoms so I know how I am doing and I can relay the
most accurate information to my doctor… so here we are.
A few months back I was sent to
another specialist to get an EMG preformed and he mentioned that I may want to
check in to seeing a Rheumatologist in addition to my regular pain specialist.
When I followed up with my doctor she made no mention of sending me to anyone
else and I honestly had forgotten the suggestion. See, I forget things a lot.
My mind is constantly swimming around in this hazy fog…
Ever since my misadventure in
trying to get off my medications to get pregnant I have been in more pain than
usual. Even on the drugs. Well, this morning I woke up and I was in pain again.
Not crippling pain, but pain none the less. My mom has been bugging me about
seeing a Rheumatologist since my doctor just says “I don’t know what’s wrong with you for sure” and “You are better than you were.” She has insinuated to
Lupus many times, but we don’t really know. I called my specialist and asked for a referral. About
10 minutes after I left my message I got a call back asking why I needed the
referral. I had already explained all that when I left my message asking for it
in the first place, but I explained again and let them know that the other
specialist recommended it. Long story short… there was no mention of it in his notes so I was denied, but I
could always make an appointment with her. Only thing is… she’s booked until September. I actually scheduled to see the RN in
three weeks in hopes that she can at least refer me.
Why is “I don’t know what’s wrong with you for sure, but you are better than you were.” supposed to be acceptable to me? Why not send
me to another specialist they may be able to help? Obviously she doesn’t need patients that bad if we have
to wait two months just to get in. By 3:00 this afternoon I felt (and still do)
like there were thousands of tiny bugs crawling underneath my skin in certain
areas. Not only is it one of the most disturbing symptoms I have, it’s also quite painful. Also, the
pain in shooting through my face and jaw. My hands are also one of the most affected
areas. They ache, especially in the joints, constantly and I can’t even wear gloves without just
about coming unglued. The feeling of the gloves on my hands are almost like
when you go weak in your knees, but with a stabbing sensation as well. Not fun.
All that being said, I am still
thankful for the many blessings in my life and for the wonderful support system
I have. I will choose to be happy. I will choose to be strong. And I will choose
to keep my spirit high no matter how bad my body tries to drag me down.
“For I consider that the sufferings of this present
time are not worth comparing with the glory that is to be revealed to us.” Romans 8:18
0 comments:
Post a Comment